CFS/LC ADVOCACY
The two conditions share many similarities, including hugely diverse symptoms that can be difficult to diagnose. The effects of both can have a devastating impact on both individuals and families.
It feels right to hold this space for sharing information about CFS and LC with those who are interested. This should not be taken as medical advice, but a way of collating information and research, with links to support groups.
Useful links
24 September 2024
Temperatures are about to drop towards the end of the week, so I thought I'd share this piece about temperature sensitivity in CFS/fibromyalgia that has also been shown in LC patients.
Cold Weather & Pain in Fibromyalgia & Chronic Fatigue Syndrome
17 August 2024
Long COVID: a clinical update published by The Lancet.
5 May 2024
I found this page that hosts links to a range of CFS related articles on The Guardian website, check it out, if you are interested.
5 March 2024
Insight into mechanisms of ME/CFS by National Institutes of Health.
15 February 2024
Chronic fatigue syndrome: Number of patients is expected to double due to long-term effects of the COVID-19 pandemic by the Medical University of Vienna.
3 December 2023
This is a link to an older Kings' College London study from 2018, but worth linking via the Telegraph article. There is a direct link towards the end of the piece. It suggests a link between CFS and a hyperactive immune system.
10 August 2023
Very welcome news as government plan aims to improve understanding, research and care for those living with CFS.
Government announces new plan to help those impacted by ME/CFS